I'm honoured to run today's guest post by Cameron Von St. James, who took care of his wife, Heather, during her treatment for mesothelioma and their infant daughter. Thank you to all the caregivers out there. - Lori
Cameron Von St. James
November 21, 2005 is a day that will be burned in my memory forever. That is the day that my wife Heather received her malignant pleural mesothelioma cancer diagnosis. Immediately, my work as a caregiver started.
It is an understatement to say that I was unprepared for the task. Only three months earlier, Heather and I celebrated the birth of our only child, Lily. Just like any other family, we were planning holiday celebrations and excitedly preparing for Lily’s first Christmas. However, our holiday plans would quickly change, as we began down a long and difficult road to beat cancer.
My journey to becoming a caregiver
My duties as a caregiver began before we even left the doctor’s office where we received the diagnosis.
Heather’s doctor described her cancer in detail. He said we needed a specialist. We had three options. One was the local university hospital. Another was a great regional hospital, but they did not have a mesothelioma program. The third option would be to go all the way to Boston to see Dr. David Sugarbaker, a specialist in mesothelioma.
Looking at Heather, I could see she was in shock and unable to make a decision. Her eyes pleaded with me for help. I made the snap decision to go to Boston. I asked our doctor to help us make the arrangements. This decision was only the first of many I would have to help make as Heather’s caregiver.
Juggling work, caregiving, and baby
In the next two months, we experienced complete chaos as our daily routines totally changed. Heather and I worked full-time jobs before she was diagnosed with cancer. After the diagnosis, she was too sick to work, and I could only work part time in order to care for her.
When I was not at work, I went with my wife to her doctor’s appointments, made travel arrangements for Boston, and took care of our baby, Lily.
It did not take long for me to feel overwhelmed with everything I had to do. I feared losing Heather, ending up broke and homeless with a baby girl. When these fears overwhelmed me, I would end up on the kitchen floor sobbing. I wanted all of this to disappear. Fortunately, I did not let Heather see me like this. I knew I had to be strong for her.
Letting people help
Our friends, family and even complete strangers helped Heather and me. We received everything from words of comfort to financial assistance. We will never be able to adequately thank everyone who helped.
If any of you or your family is diagnosed with cancer and someone offers to help, let them help. It lets you know that you are not alone. People care about you. They can help ease your burden.
Caring for someone with cancer is challenging. You will feel stress, fear and anger. Being a caregiver will probably be the most difficult challenge you will ever face. You cannot simply walk away from this responsibility like you could from a job or attending college.
Do not allow negative emotions take over. It is all right to have bad days. However, it is important to never give up hope.
Life after treatment
After mesothelioma surgery, chemotherapy and radiation, Heather beat the cancer. Seven years after her diagnosis, she is cancer free. It took years for our lives to resume as normal. However, I learned how to use my determination to my advantage. I had learned that time is precious.
Two years after Heather’s diagnosis, while I was working full time and caring for Heather and Lily, I decided to attend college and study information technology. My time as a caregiver gave me the skills and the courage I needed to pursue this dream.
I graduated with high honors and even spoke at my graduation. At graduation, I spoke about how I never thought I would be on a stage giving a graduation speech just a few years earlier, sitting in a doctor’s office hearing that my wife had cancer.
I encouraged the graduating class and those attending to never give up on their dreams. Each of us can achieve more than we ever thought possible. All we have to do is believe in ourselves.
Thank you, Cameron, for sharing your story. See a video of Heather's story on the Mesothelioma Cancer Alliance website.